Latest News

Please wait while we gather your results.

CIS Advocacy Template Letters

Now Available: CIS template letters to facilitate medically necessary diagnostic testing and treatments. Download to begin using them today!

Learn More

WCIS & ECI - Leadership Webinar

Join the WCIS and ECI Committees in a new Leadership Webinar on June 4th. Speakers featured are Drs. Jordan Orange, Roshini Abraham, and Troy Torgerson.

Learn More

X4 Pharma - Phase 3 Clinical Study

X4 Pharmaceuticals (Cambridge, MA) is planning to start a Phase 3 clinical study within the next few months, entitled “A Phase 3, Randomized, Double-Blind, Placebo-Controlled, Multicenter Trial of mavorixafor (X4P-001) in Patients with WHIM Syndrome with Open-Label Extension”

Learn More

The CIS Foundation Represented at the 2019 Boston Marathon

CIS's very own, Liz Varga will be running on behalf of the CIS Foundation in the upcoming Boston Marathon. Support her by donating to the CIS Foundation today!

Learn More

Hyper IgM Foundation Offers $25K in Seed Grant Funding

The Hyper IgM Foundation is proud to announce the availability of $25,000 in seed grant funding for researchers interested in the advancement of a cure for Hyper IgM Syndrome and primary immunodeficiency disorders. The intent of this funding is to accelerate scientific work focused on improving the treatment, quality of life, and long-term outlook for patients with Hyper IgM. Special consideration will be given to well-defined projects focused on gene therapy/editing for CD40 Ligand Deficiency as well as hematopoietic stem cell transplantation for CD40 Ligand Deficiency. During the 2019 calendar year, the Hyper IgM Foundation will be awarding one-time grants of up to $25,000 to worthy recipients. Grant applications for 2019 grants have a submission deadline of June 30th, 2019.

Learn More

top