Endorsement of IPOPI Advocacy Statement on PIDs and Disability Support

Endorsement of IPOPI Advocacy Statement on PIDs and Disability Support

To whom it may concern,

 

Primary immunodeficiencies (or PIDs) are chronic and rare diseases caused by the absence or malfunctioning of components of the immune system. Most PIDs cannot be cured and require long-term treatment and follow-up1. These conditions have a major impact on the patients’ life and wellbeing. Multiple studies confirm that PID patients have significantly lower physical health and abilities compared to the general population, and suffer from reduced psychosocial wellbeing and overall quality of life (QoL) measures2–4...
 

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